Welcome to Canada’s national spinal cord injury registry.

The Rick Hansen Spinal Cord Injury Registry is active in 31 major Canadian acute care and rehabilitation hospitals across the country. It tracks the experiences and outcomes of people with traumatic spinal cord injuries (SCI) during their journey through acute care, rehabilitation and community reintegration. Details about participants' spinal cord injuries including extent of injury and level of paralysis, recovery, and success of various treatments are among the data recorded.

This data is stored in a central location, with individual privacy and security of information rigorously ensured. It can then be used by researchers and clinicians to better understand SCI and the effectiveness of specific treatments, practices or programs for improving functional outcomes and quality of life after SCI. As well, the Rick Hansen SCI Registry and its powerful data collection tools are being used as a platform to support important new multi-centre clinical trials for SCI.

Reaching out globally.

While we are a Canadian-based registry, our goal is to expand internationally in order to increase the quantity and quality of data collected. Already, we are working with partners in Queensland, Australia to establish a site in Brisbane, and we are negotiating expansion into other countries including Israel, China and the United Kingdom.

Our Top Priority: People with SCI and better outcomes for them.

The most vital and fundamental component of the Registry is its contributors - people with spinal cord injury. The level of continued participation of its contributors will determine the value and success of the Registry. In return, the Registry will benefit people with SCI through access to up-to-date, reliable information about SCI, and clinical and rehabilitation options. In the long term, the reward is clear - the Registry will accelerate the discovery, validation and translation of relevant treatments and practices that will increase independence and improve outcomes and quality of life for people living with SCI.