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Data Collected and How It's Used |
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 What information does the Registry collect and use from you?
The Registry collects and uses your information (SCI data) for its work in translational research. The aim of this research is to seek breakthroughs in acute care, rehabilitation, and community integration through facilitating communication, promoting best practices, and partnering with communities. The type of SCI data that RHI collects includes:
- Date of birth and gender.
- Cause, location, and date of injury.
- Admission and discharge information (movement through each care centre).
- Surgical procedures and diagnostic services required.
- Outcomes of treatment, including impact on quality of life and physical functioning.
It’s important to stress that your confidentiality is protected by strict privacy and security measures. For more information please click here.
How does RHI use your SCI data?
Your SCI data is transmitted to the Registry, where Registry staff and participating researchers use it to:
- better understand the importance of how time and specialized care may improve the treatment of spinal cord injuries.
- support translation of promising new research into treatments and investigate ways to more effectively evaluate an individual’s functional recovery.
- promote and monitor adoption of new knowledge and best practices across health care delivery systems (e.g. acute, rehab, and community care centres).
- check that data collection is consistent and accurate and that tools to assess improvements in quality of life are reliable and properly administered.
- investigate different models of delivering healthcare and find and encourage use of those that produce the best outcomes.
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For People with SCI