Currently, the RHSCIR is registering individuals who suffer a traumatic spinal cord injury (SCI) and are admitted to a participating health care site in Canada (see Interactive Map of Participating and Potential Sites).

The future goal of the RHSCIR is to capture all Canadian SCI cases into it's national database to become the ultimate custodian of the National SCI dataset.

If you would like more information on the RHSCIR, please contact us: info@rickhansenregistry.org

Some organizations that may be of interest to you:

• Canadian Paraplegic Association - www.canparaplegic.org
• Christopher Reeve Paralysis Foundation - www.christopherreeve.org
• International Collaboration On Repair Discoveries - www.icord.org
• International Spinal Cord Society & Affiliated Societies - www.iscos.org/uk
• Miami Project - www.themiamiproject.org
• National Centre for the Dissemination of Disabilty Research - www.ncddr.org
• National Spinal Cord Injury Association - www.spinalcord.org
• International Campaign for Cures of SCI Paralysis (ICCP) - www.campaignforcure.org

Personal information will only be collected on those individuals who have voluntarily given their informed consent.

The Registry is committed to protecting the information with which it has been entrusted. Protection encompasses privacy, confidentiality, and security issues and is addressed through written policies and standard operating procedures.

Please contact Stephen Gage (sgage@scisolutionsnetwork.ca) with questions related to privacy

A registry is an electronic database that is able to store large amounts of data in a centralized and standardized format. Some key components and objectives of a registry include:

• Patient information organized in a relational database  (a relational database stores data in one or more tables, and these tables can be joined in a variety of ways to efficiently access the information)
• Appropriate platform for research studies 
• Output relevant reports
• Able to link with appropriate external sources of data or other databases (upon proper authorization)
• A registry must be flexible and modular by nature

• Standardized
• Longitudinal
• Measurable
• Objective
• Descriptive
• Non-Experimental (cannot determine cause and effect)
• Non-Nominal (Non Identifying)
• Population Based

• Patient Identification and Linking Data
• Demographic/Socio - Economic Data
• Diagnostic Data
• Procedural Data
• Treatment Data
• Outcome Data (i.e. quality of life)

• Generate and Test Hypotheses (i.e. determine correlations, observational studies)
• Resource for clinical Trials - Evidence Based Practice
• Quality Management (organizational performance and clinical outcome)
• Directory/Listing
• Communication Tool
• Program Planning
• Policy Development